More Doctors and Baby Prep

Today has been a good day--a lot better than yesterday!

Yesterday started off with a phone call from Emma's hematology team to report results of her blood work. The person on the phone had not reviewed the results herself, and had not had the doctor review the results yet. Anyway, while I was on the phone, she was reading results and mumbling to herself. (Yes, putting me on hold would have been a better option). I heard her say, "normal, normal, hmmm that's elevated, normal, elevated). I was expecting her thrombin time to come back elevated--that's part of the Von Willebrands disease diagnosis. However, the other elevated results I was not expecting. I asked the person on the phone what was elevated, and she did not want to tell me without the doctor review--so, I specifically asked about each test. I found out that one of her renal function test results came back elevated: Bun and creatin ratio. She could not tell me anything else. So, I spend the whole day tense--a mother's worst nightmare is hearing "your child will not survive." I have heard that before--and its devastating. Hearing "abnormal results" in regards to blood work takes me back to that place I was with Hailey. So, for the second time in the last couple of weeks, I spend a day wondering what is wrong with my perfect girl. Essentially, after the doctor reviewed the results--we are told that this issue is separate from VWD and could indicate something else. However, Emma's BUN levels are normal, and her Creatin levels are normal--indicating proper kidney function. They are unsure why her ratio is off--and will be looking into it further during her DDAPV challenge test. The hematology team feels like because her other levels are normal, that this is not a significant problem, but will be discussing it with someone who is more knowledgeable about renal function tests.
I feel better that her kidneys are functioning, and there could be a lot of explanations as to why her B&C ratio is elevated--so, I am calmly waiting on more information and praying that there is nothing else going on.

Today, we did hear from the nurse practitioner from the hematology team. She is the person who will be leading the DDAPV challenge. We have it scheduled for Friday (May 14) at 11:30--it will be a long day--an hour to two hours with an IV--with a two year old will feel like 2 days! However, I will be glad to get it over with. Thoughts and prayers on Friday please--hoping we can somehow keep Emma calm and still enough for the challenge test to be effective!

I have been working on the final prep for baby. I am almost packed for the hospital--and I have a couple of small things to wash for when he/she is here and then we should be good to go. Jon assembled the double stroller and we set up the swing and bouncy seat. Its weird to see all this baby stuff out again! We are down to under 3 weeks before the actual scheduled date--and as well as my appointments have been going--we will probably not have the baby early!

Emma is super excited about the baby--she has been practicing being a big sister to her baby dolls. I have to keep in mind, despite all this extra stress concerning her test results, that these are my last few weeks one on one with her. We are having a lot of fun and I do truly appreciate spending time and playing with her. I just want her to be happy and healthy.